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Showing posts with the label Paediatric NMO

30 Day Chronic Illness Challenge 3/6

30 Day Chronic Illness Challenge Made By CFS_Zombie Day 11 Why do you believe you have this illness? Bad luck or higher power or something else? Bad luck. There must've been some unbalanced chemicals that created the antibody. Things just happen.  Day 12 Briefly explain to a healthy person  what it is like to live with this illness ? Life with any illness is difficult but for me the hardest part is the chronic pain and fatigue. I miss out on a lot of things because of my body being silly. The chronic illness not only has a physical effect but all of the complications and worries bring psychological issues.  Day 13 Has your physical illness had any effect on your mental health? Explain . My physical illness has had drastic effects on my mental health. Weight gain from the steroids was one really hard battle I fought. I now love my body because I believe it looks healthy.  I get really upset when I get new symptoms because I hate having...

Spoonie on wheels!

Having your independence taken away is truly one of the worst parts of having a chronic illness for me. Even though I'm registered blind I use to go out with friends have fun, cope without using my cane because I had learnt all the routes by landmarks, sounds and the floor texture. I would be fine you couldn't even tell I was blind unless there's were steps of course.  Even when I was on crutches all those times that my legs were fatigued from NMO I still manages to travel around with my friends and family. Last year that all changed when my body was not physically capable of being pushed further to its limits. We rented a wheelchair while on holiday and I realised how much easier it was. Although I hated being visibly sick and the stares of curiosity I would receive it was easier.  When we arrived once I had finally admitted that I needed HELP! We got in touch with physiotherapy who then ordered me a chair. A year later and I'm still in the chair unless I'm walki...