Dear struggling spoonie

Dear struggling spoonie!

People think having a chronic illness is a matter of miraculously recovering or just die... What about fighting? We have fought battles that most people wouldn't ever be able to fight. Be proud of yourself for being so strong.  The unintelligent people who have never taken the time to ask about your illness who judge you will be the tiniest of fights. Their words can be flicked away where as our usual fights need a army to beat!   You are your own army and your own armour.  I know you can do this you've done it before. 
You aren't the only one going through this although you have this illness your family have you and the emotional effects it has on them. It may seem like they don't care but they do. They are just a trying to fight through each day as it comes just like you. There will be expectations like you having fun on your vacation or birthday but the only persons expectations you have to follow are your own. Even opening your eyes, eating food, getting dressed or simply just breathing that is something wonderful it means you've still got some fight left in you. 
Physically, mentally or emotionally we all have something that's broken something that isn't working you are not alone in this.  You need to believe in yourself you need to take care of yourself even if it's just mentally it makes the world of difference. Learn from your battles. Be proud of the scars. Listen to your heavy breathing. Notice your wild heart. All of these things prove that you are still alive even if you don't feel it.  You've got this. You've done it before you can do it again. Keep on fighting. You are a true warrior. Don't forget that nobody is expecting you to smile every day they are waiting for you to ask for help when it's needed. Take what you are being given even if it's a hand full of pills with side effects worse than your illness itself if it's keeping you here you are lucky.  
I am extremely proud of you all. Well done. 

Lots of love from your spoonie sister Niamh. 

Comments

  1. i hope this has helped some of you as I know many
    Of my friends are fighting truly terrifying battles. You are doing great. You rock!

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